Paying for Hospice Care
About two-thirds of hospice patients in New Jersey have their hospice care covered through Medicare Part A, specifically the Medicare Hospice Benefit. The Benefit pays for all hospice services related to the terminal illness, except that the patient is required to co-pay up to $5 or 5% of each prescription (whichever amount is lower).
The hospice agency you select determines which services the patient will receive, and the degree and frequency of services, based on patient/family need, regulations and hospice resources. These services include medical care, nursing, social work services, housekeeping related to the patient, medical equipment related to the terminal illness, medications related to the terminal illness, various kinds of counseling (spiritual, emotional, nutritional) and the services of hospice volunteers. Later on, the family may choose to receive free bereavement counseling from the hospice.
Hospice is also covered under many policies of insurance companies and managed care companies. A Medicaid Hospice Benefit is also available to patients who are eligible for Medicaid.
Patients without Medicare, Medicaid or private insurance may pay privately for hospice care. These fees are set by the hospice agency itself. The hospice may choose to use a “sliding scale” for families in very difficult financial circumstances, and may choose to provide care without charge in very exceptional cases. Each hospice has its own policies to make its decisions on these matters. The hospice will likely assess the patient and family’s financial resources in determining whether to apply the “sliding scale” or provide care without charge, and may decline the request if families refuse to cooperate in this assessment.
There is no federal or state law that requires a hospice agency to provide its services for free, or at a discounted rate. Many agencies, however, are glad to work something out with families in true financial need.
Is hospice care available through Medicaid?
Yes. New Jersey established a Medicaid Hospice Benefit in 1992. Its services are virtually identical to those of Medicare. If you are eligible for Medicaid, let your hospice know as soon as possible, preferably before admission.
Be aware that the federal government does not allow Medicaid recipients to receive two kinds of Medicaid “waiver programs” at once. Hospice is a Medicaid “waiver program.” Admission to hospice through the Medicaid Hospice Benefit may disqualify a recipient from continuing on other Medicaid benefits such as CCPED. You will not risk your existing Medicaid benefits by discussing the issue openly with a hospice social worker.
Many Medicaid hospice patients receive their hospice services in nursing homes where they live. Their Medicaid Hospice Benefit covers both the hospice services and the room and board services at the nursing home.
Are you sure there’s no cost for hospice?
If you are receiving your hospice care through Medicare Part A or through Medicaid, all costs related to the terminal illness will be covered, except that the patient/family will need to co-pay $5 or 5% of the cost of each prescription (whichever is least).
If you are receiving your hospice care through private insurance or managed care, you should check your policy to determine coverage.
Two things are especially important for patients and families to know:
Your hospice benefit will not cover costs of medications, medical equipment or services unrelated to the terminal diagnosis – for example, if someone has had a heart condition for years but is admitted to hospice because of terminal cancer, the hospice benefit will pay for the cancer drugs, but not the heart drugs. If you wonder whether an expense is related to your terminal diagnosis, please speak to hospice staff.
The costs of room and board are not part of the hospice benefit. The exception is for Medicaid Hospice beneficiaries, whose nursing home room and board can be covered through the Medicaid Hospice Benefit.
Can I get hospice care in a nursing home?
Hospice can provide hospice care to a patient wherever that patient lives, as long as it is a safe environment for the patient and the hospice caregiver. Many (but not all) nursing homes and hospices have contracts through which hospice provides care in nursing homes.
A nursing home resident who is ready for admission to hospice care should ask the nursing home’s director of nursing which hospice(s) provide care in that facility.
If someone is considering entering a nursing home and is receiving (or ready for) hospice care, it would be a good idea to ask the hospice which nursing homes it works with.
NJHPCO has found that some nursing homes will not allow hospice to practice in their facilities. NJHPCO and many legal experts say that it is a violation of the rights of nursing home residents for a nursing home to refuse them access to hospice care within their facility, since hospice care is an entitlement under Medicare Part A and New Jersey Medicaid. Some nursing homes disagree with that position.
FYI, a hospice can ask a nursing home for a contract to provide care to a single patient. Many nursing homes will do so.
How would I pay for hospice care in a nursing home?
According to the rules of the federal government, one cannot access both the Medicare Hospice Benefit and the Medicare Nursing Home Benefit at the same time.
Patients on the Medicaid Hospice Benefit can, however, get their nursing home room and board paid through the Medicaid Hospice Benefit.
Coverage for hospice care and nursing home care might also be provided through your third-party insurance (i.e., health insurance companies or managed care companies). It is also possible to pay for your hospice care out-of-pocket, thus preserving your nursing home room and board coverage. You are encouraged to speak to your hospice social worker about these arrangements.
What is a “hospice unit?”
A small but growing number of New Jersey hospitals have a “hospice unit.” This is a section of the hospital designed to provide a home-like environment in which patients can receive hospice services. Care is provided by the hospice, and hospice staff is present 24 hours per day in these hospice units. Not all hospices have hospice units.
It is the decision of the hospice whether to admit a patient to the unit. The hospice will take into account such factors as severe pain, complicated symptom management, family readiness to accept the patient back home, the absence of a primary caregiver at home, financial resources available to the family, financial resources available to the hospice, and the safety of the patient’s home environment.
Policies regarding admission, room and board payment, and length of stay in a hospice unit are determined by the individual hospice agency.
What is a “hospice house” or “residential hospice”?
There are a few “hospice houses” in New Jersey, also called “hospice residences.” These are free-standing facilities, each run by a licensed hospice for hospice patients who have no other appropriate site to receive hospice services. These are home-like settings in which hospice patients are expected to reside until they die. Most New Jersey hospices do not have a hospice house.
It is the decision of the hospice whether to admit a patient to the hospice house. The hospice will take into account such factors as the absence of a primary caregiver at home, financial resources available to the family, financial resources available to the hospice, family readiness to accept the patient back home, and the safety of the patient’s home environment.
Policies regarding admission and room and board payment are determined by the individual hospice agency. To find out if a hospice house exists near you, call NJHPCO at 908-233-0060.
How would I pay for care in a hospice residence?
This is a matter to be worked out between the hospice and the family. If you believe a prospective hospice patient can only be cared for in a hospice residence, contact the social worker at one of the hospices that have a hospice house (call NJHPCO at 908-233-0060 to find which hospices have houses). The hospice will require a financial assessment of the family’s resources and insurance coverage before admitting the patient to the hospice house. Requests for placement at a hospice house far exceed the number of available beds.
Can I get hospice care in an assisted living residence?
New Jersey’s licensure law allows hospice care in any kind of residence. Let the hospice staff know of the living arrangements, and they will work with the staff at the assisted living residence.
If you would like to speak to a NJ hospice attorney, contact Fredrick P. Niemann, Esq. toll-free at (855) 376-5291 or email him at firstname.lastname@example.org to schedule a consultation about your particular needs. He welcomes your calls and inquiries and you’ll find him very approachable and easy to talk to.
Fredrick P. Niemann, Esq. NJ Hospice Care Attorney
Written by Fredrick P. Niemann, Esq. of Hanlon Niemann & Wright, a New Jersey Hospice Care Attorney